THE CORPORATE REPUTATION OF PHARMA THE PATIENT PERSPECTIVE IN 2015 (NORDIC EDITION)

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1 THE CORPORATE REPUTATION OF PHARMA THE PATIENT PERSPECTIVE IN 2015 (NORDIC EDITION) Feedback from 147 Nordic patient groups PUBLISHED JUNE 2016

2 Syöpälääkkeiden kehitys on ollut hyvä, ja yhä useammat paranevat. National Finnish patient group with an interest in cancer in 2016, patientview is publishing 20 corporate reputation of pharma reports, analysing the results from the 1,075 patient groups responding to the 2015 survey. specialty reports: cancer I circulatory conditions I diabetes I hiv/aids I hepatitis I neurological conditions I mental health I respiratory conditions I skin conditions I rare diseases (10 reports) geographic region reports (in addition to this current nordic report): europe-wide I eastern europe I germany I global I italy I latin america I spain I uk I us (10 reports)

3 CONTENTS ABOUT THIS REPORT Page 1 WHAT DID PATIENT GROUPS IN THE NORDIC REGION SAY ABOUT PHARMA IN 2015? Summary of the industry-wide findings in Scandinavia Page 3 SOME POINTS ABOUT THE NORDIC CORPORATE RANKINGS Page 6 WHAT CAN PHARMA COMPANIES DO TO IMPROVE THEIR CORPORATE REPUTATION? Page 7 A FEW COMMENTS FROM PATIENT GROUPS IN THE NORDIC REGION, 2015 Page 8 CASE STUDIES: PATIENT-GROUP RELATIONS AND PATIENT CENTRICITY AT Leo Pharma Lundbeck Page 10 METHODOLOGY OF THE PATIENT-GROUP SURVEY Page 14 QUESTIONNAIRE FOR PHARMA COMPANIES 2015 Page 15 APPENDIX 1: Data on how patient groups in the Nordic region see the pharma industry in 2015 Page 16 APPENDIX 2: Rankings of the 20 pharma companies for each of the 6 indicators of corporate reputation, as perceived by patient groups in the Nordic region in 2015 Page 21 APPENDIX 3: Profiles of the 20 companies Page 30 APPENDIX 4: Profiles of the 147 respondent patient groups Page 52

4 LIST OF TABLES AND CHARTS BASED ON THE VIEWS OF PATIENT GROUPS IN THE NORDIC REGION Percentage of patient groups in the Nordic region claiming familiarity with the company Page 2 Percentage of patient groups in the Nordic region claiming familiarity, and which also worked with the company Page 2 % of patient groups (by geographic region) stating that pharma is Excellent or Good at BEING PATIENT CENTRIC % of patient groups (by geographic region) stating that pharma is Excellent or Good at PROVIDING HIGH- QUALITY PATIENT INFORMATION Page 4 Page 4 % of patient groups (by geographic region) stating that pharma is Excellent or Good at HAVING A GOOD RELATIONSHIP WITH THE MEDIA Page 4 Final ranking of pharma companies for corporate reputation in 2015, according to patient groups based in Scandinavia, v. final ranking in Scandinavia in 2014 Page 6 The percentage of patient groups from four Nordic countries that said pharma had an Excellent or Good corporate reputation in 2015 Page 6 If a pharma company wishes to improve its corporate reputation with patients and patient groups, which single strategy from the list below do you think would be MOST IMPORTANT for the company to follow? Please select only ONE option How do you think your organisation s members (or the people you represent) would rate the corporate reputation of the following healthcare sectors in 2015? Page 7 Page 17 What do you think has happened to the corporate reputation of the pharma industry over the past five years? Page 18 How good or bad do you think the pharma industry is in 2015 at carrying out the following activities (all of which influence their corporate standing with patients and patient groups in the Nordic region)? Pages Companies with the most effective patient-centred strategy (rankings of 20 companies, 2015) Page 22 Companies providing the best high-quality patient information (rankings of 20 companies, 2015) Page 23 Companies with the best record on patient safety (rankings of 20 companies, 2015) Page 24 Companies with the most-useful high-quality products (rankings of 20 companies, 2015) Page 25 Companies with the best record of transparency (rankings of 20 companies, 2015) Page 26 Companies with the best record on integrity (rankings of 20 companies, 2015) Page 27 Rankings of the 20 pharmaceutical companies in 2015, ALPHABETIC ORDER Page 28 Rankings of the 20 pharmaceutical companies in 2015, HIGHEST TO LOWEST Page 29 Profile of 2015 s 147 respondent patient groups based in the Nordic region by country Page 53 Profile of 2015 s 147 respondent patient groups based in the Nordic region by therapy area Page 53 Geographic remit of 2015 s 147 respondent Scandinavian patient groups Page 54

5 LIST OF TABLES AND CHARTS CONTINUED AbbVie page 32 Actavis page 33 Amgen page 34 AstraZeneca page 35 Bayer page 36 Boehringer Ingelheim page 37 Bristol-Myers Squibb page 38 Eli Lilly (Lilly) page 39 GSK page 40 Janssen page 41 Leo Pharma page 42 Lundbeck page 43 Merck & Co page 44 Novartis page 45 Novo Nordisk page 46 Pfizer page 47 Roche page 48 Sandoz page 49 Sanofi page 50 Takeda page 51 profiles of the 20 companies, according to the patient groups in scandinavia that are familiar with these companies, or which have worked with them Each profile contains... company background information Annual revenue (latest-available year), comprising amount in currency, as quoted by the profiled company itself. = increase in revenue over the previous year or = decrease in revenue. The profiled company s main treatment subject areas (and areas of R&D). A mission statement from the profiled company. how the company has performed at the six indicators of corporate reputation The profiled company s performance at the six indicators of corporate reputation in 2015, according to the patient groups in the Nordic region familiar with the company. The profiled company s performance at the six indicators of corporate reputation, according to the patient groups in the Nordic region that have worked with the company. How the profiled company performed in the Nordic region for different therapy areas, compared with the company s averages in the Nordic region across all therapy areas in How the profiled company performed in the Nordic region for different countries/regions, compared with the company s averages in the Nordic region in how the company ranks for corporate reputation compared with other companies The profiled company s rankings in the Nordic region in 2015 for the six indicators of corporate reputation, compared with 19 other companies. The profiled company s rankings worldwide in 2015 for the six indicators of corporate reputation, compared with 47 other companies. profile of the patient groups familiar with the company Other companies that partner with a significant number of the profiled company s partner patient groups. The therapy areas and countries of the patient groups familiar with the profiled company. Janssen Pharmaceutical Companies of Johnson & Johnson

6 Contact details PatientView Registered office: One Fleet Place, London, EC4M 7WS, UK Tel: +44-(0) Registered in England, number: Data protection registration number: Z VAT registration number: GB Copyright 2016 PatientView Ltd. All rights reserved. This booklet is the property of PatientView, and no part may be reproduced without permission, or passed on to any third party without the permission of PatientView.