Summary Data. Please contact with any questions about the Summary Data.

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1 Summary Data From January 1 st until the end of June 2018, hospital palliative care programs entered their 2017 data into the National Palliative Care Registry. The data collected are aggregated and annualized by programs prior to submission. Survey data is cleaned and corrections are made by the Registry team to ensure accurate data. Survey questions that met at least a 60% response rate are included in the Summary Data. The Summary Data presented here are stratified by hospital size (based on total hospital beds). Additional comparisons (by staffing size and penetration) are available on your program s Registry dashboard. Participating programs receive longitudinal and comparative reports that show where their program stands compared to similar programs and how they have progressed over time. We post this data publicly as a service to the field, non-participating programs, and other stakeholders who are interested in the data we collect. The Registry is free and open to all palliative care programs. Approximately 20% of hospitals with palliative care participate each year. The Registry data represents a sample of hospital palliative care programs and should be interpreted appropriately. The Summary Data is limited to adult and mixed adult-children programs. Pediatric palliative care program will be presented separately. How to Interpret: The Summary Data show both participation rates for questions and responses, as well as averages and other descriptives based on participating programs answers. Additional cross-variable analyses are presented in the case of metrics like penetration and workload. The top bolded row for each question is the response rate. 312 programs representing 86% of participating programs responded to questions on patient age distribution If a question is multiple choice, the percent that selected each answer is displayed. 263 programs representing 77% of respondents reported documenting non-billable subsequent visits If a question requires a response of a number or a count, averages are displayed. Mean: On average, programs reported seeing 830 initial consults annually in 2017 For staffing Head Count (# of people) and FTE (full-time equivalent), a mean and a mean without 0 are presented. Mean: On average, programs report 2 physicians on their teams Mean without 0: For the 273 programs that reported having a physician on their team, they reported an average of 2.4 physicians Please contact registryhelpdesk@capc.org with any questions about the Summary Data.

2 National Palliative Care Registry TM Data Summary (non-pediatric Palliative Care Programs) Bed Sizes < Total Responses Variable n % n % n % n % n % HOSPITAL METRICS Hospital Ownership Public (government: federal, state, county city) Not-for-profit For-profit Location Urban Suburban Rural Teaching Hospital Yes No Hospital Metrics Hospital Admissions Mean # of hospital admissions Hospital ADC Mean average daily census Hospital Deaths Mean hospital deaths Hospital Discharges Mean # of discharges PALLIATIVE CARE PATIENT POPULATION Patient Population Adults Only Adults and Children Patient Age Distribution to to to to to or older Patient Gender Distribution Female Male Patient Ethnicity Distribution Black/African America non-hispanic White/Caucasian non-hispanic Asian non-hispanic American Indian/Alaska Native non-hispanic Hawaiian Native/Pacific Islander non-hispanic Hispanic / Latino PATIENT VISITS Initial Consults Mean # of initial consults Median # of initial consults

3 Minimum Maximum Unqiue Patients Mean # of unique patients Median # of unique patients Minimum Maximum Penetration Mean Penetration Median Penetration Minimum Maximum Track Non-Billable Follow-up Visits No Yes Palliative Care Team Role Consult % Consult Primary % Primary Co-manage % Co-manage Depends on Circumstances % Depends Sees Patients in Observation Beds No Yes Not Applicable Sees Patients in Emergency Department No Yes Not Applicable SCREENING AND REFERRALS Standardized Trigger Tool No standardized trigger tool Yes, has standardized trigger tool Referral Source Location Medical/Surgical Mean Percentage At least 25% of all referrals At least 50% of all referrals At least 75% of all referrals Intensive Care Unit (ICU) Mean Percentage At least 25% of all referrals Oncology Mean Percentage At least 25% of all referrals Emergency Department Mean Percentage Telemetry / Step-down Mean Percentage At least 25% of all referrals

4 Gastroenterology/Hepatology Mean Percentage General Pediatrics Mean Percentage Geriatrics ACE Unit Mean Percentage MD Office / Home (direct admit) Mean Percentage Hospice Mean Percentage Referring Specialist Hospitalist Mean Percentage At least 25% of all referrals At least 50% of all referrals At least 75% of all referrals Oncologist Mean Percentage At least 25% of all referrals Cardiologist Mean Percentage Nephrologist Mean Percentage Pulmonary/Critical Care Mean Percentage Surgery Mean Percentage Neurologist Mean Percentage Gastroenterologist/Hepatologist Mean Percentage Internal Medicine Mean Percentage Family Medicine Mean Percentage Other referring clinical specialist Mean Percentage TJC CERTIFICATION, SERVICES INTEGRATION Joint Commission Advanced Certification for Palliative Care Yes Yes, and have been re-certified Preparing to apply Not eligible Program does not have requirements Not Planning on applying Relationship: Hospice No relationship exists One administrative entity Administratively separate Contracts in place Informally collaborate Other Relationship: ICU

5 Rarely see ICU patients No formal coordination Work collaboratively to develop system ICU has plans for palliative care Relationship: Emergency Medicine Rarely see EM patients No formal coordination Work collaboratively to develop system EM has plans for pal care Electronic Health Record Hospital EHR Has a Hospital EHR Cerner Epic Meditech Palliative Care Program EHR Has a Palliative Care Program EHR Cerner Epic Meditech Custom Palliative Care Reports Yes, gets custom palliative care reports from EHR No DIAGNOSIS AND CODE STATUS Diagnosis Cancer Mean Percentage At least 25% of all referrals Cardiac Mean Percentage Pulmonary Mean Percentage Complex chronic/failure to thrive Mean Percentage Renal Mean Percentage Vascular Mean Percentage Congenital / Chromosomal Mean Percentage Infectious/Immunological Mean Percentage Gastrointestinal Mean Percentage Hepatic Mean Percentage Hematology Mean Percentage Endocrine/Metabolic Mean Percentage In-utero complication / condition Mean Percentage Neurologic/stroke/neurodegenerative

6 Mean Percentage Dementia Mean Percentage Trauma Mean Percentage Code Status Full Code Mean Percentage Limited Code Mean Percentage DNR/DNI Mean Percentage Unknown Mean Percentage DISCHARGES Discharges Alive and Died Discharged Alive Died during Hospital Stay Discharge Location Home (includes Assisted Living and Home Hospice) Mean Percentage Skilled Nursing Facility (SNF) Mean Percentage Inpatient or Residential Hospice Mean Percentage Acute Inpatient Rehabilitation Facility Mean Percentage Long-term Acute Care Hospital (LTAC) Mean Percentage General Hospital Mean Percentage Other Mean Percentage LENGTH OF STAY Discharged Alive Admission to Consult: Mean Admission to Consult: Median Consult to Discharge: Mean Consult to Discharge: Median Overall: Mean Overall: Median Died during Hospital Stay Admission to Consult: Mean Admission to Consult: Median Consult to Discharge: Mean Consult to Discharge: Median Overall: Mean Overall: Median STANDARDIZED PROCESSES Plans in Place All 4 Plans in Place Marketing Plan

7 Bereavement Education Quality Improvement Patient and Family Satisfaction Survey Yes No Telemedicine Audio and Video Audio Only (phone only) Neither Audio nor Video Team Wellness Yes, program has policies promoting team wellness No team wellness policies STAFFING Staffing model Embedded, program is internal to hospital Program is partially internal with some contracted services Program is administered by an outside contracted agency Total Staff Head Count (funded, in-kind and volunteer) Mean Median Minimum Maximum Physician (DO/MD) Head Count Mean Mean (without 0) Advanced Practice Nurse (APRN) Head Count Mean Mean (without 0) Physicians Assistant Mean Mean (without 0) Registered Nurse (RN) Head Count Mean Mean (without 0) Medical Residents Head Count Mean (without 0) Physician Fellows Head Count Mean Mean (without 0) Licensed Practical Nurse (LPN) Head Count Mean (without 0) Psychologist Head Count Mean Mean (without 0) Psychiatrist Head Count Mean (without 0) Social Worker Head Count Mean Mean (without 0)

8 Chaplain/Spiritual Care Head Count Mean Mean (without 0) Physical/Occupational Therapist Head Count Mean Mean (without 0) Massage Therapist Head Count Mean Mean (without 0) Music/Art Therapist Count Mean Mean (without 0) Doula Head Count Mean Mean (without 0) Child Life Specialist Head Count Mean Mean (without 0) Dietician/Nutritionist Head Count Mean Mean (without 0) Pharmacist Head Count Mean Mean (without 0) Ethicist Head Count Mean Mean (without 0) Hospice Liaison Head Count Mean Mean (without 0) Medical Director (non-clinical time) Head Count Mean Mean (without 0) Administrative Support Head Count Mean Mean (without 0) Total Staff FTE (funded, in-kind and volunteer) Mean Median Minimum Maximum Physician (DO/MD) FTE Mean Mean (without 0) Advanced Practice Nurse (APRN) FTE Mean Mean (without 0) Physicians Assistant Mean Mean (without 0) Registered Nurse (RN) FTE Mean Mean (without 0) Medical Residents FTE

9 Mean (without 0) Physician Fellows FTE Mean Mean (without 0) Licensed Practical Nurse (LPN) FTE Mean (without 0) Psychologist FTE Mean (without 0) Psychiatrist FTE Mean (without 0) Social Worker FTE Mean Mean (without 0) Chaplain/Spiritual Care FTE Mean Mean (without 0) Physical/Occupational Therapist FTE Mean (without 0) Massage Therapist FTE Mean (without 0) Music/Art Therapist Count Mean Mean (without 0) Doula FTE Mean (without 0) Child Life Specialist FTE Mean Mean (without 0) Dietician/Nutritionist FTE Mean (without 0) Pharmacist FTE Mean Mean (without 0) Ethicist FTE Mean (without 0) Hospice Liaison FTE Mean Mean (without 0) Medical Director (non-clinical time) FTE Mean Mean (without 0) Administrative Support FTE Mean Mean (without 0) Complete Interdisciplinary Team Physician, Nurse (APRN or RN), Social Worker, and Chaplain Program Lead

10 Physician-led (1 FTE or more physician) Physician-led (Less than 1 FTE physician) APRN-led (No physician, at least 1 FTE APRN) APRN-led (No physician, less than 1 FTE APRN) RN-led (No physician, no APRN, at least 1 FTE RN) Workload Initial Consults per 1 FTE APRN, Physician, or PA Initial Consults per 1 FTE of Interdisciplinary Team Initial Consults per 1 FTE of all palliative care staff Palliative Care Certification Physician Advanced Practice Nurse Registered Nurse Social Worker Chaplain Palliative Care Team Meetings Weekly, everyone attends Bi-weekly, everyone attends Weekly, not everyone attends Bi-weekly, not everyone attends Meetings scheduled as needed on a case-by-case basis No formal meeting schedule Palliative Care Program Coverage Provides 24/7 coverage Not available 24/ STAFF RECRUITMENT Staffing Stability Stable - not recruiting or hiring Reduced staff in past two years - not currently recruiting Requesting/Recruiting additional staff FUNDING Program Funding (Mean %) Ongoing Hospital Support Mean Percentage % Hospital Support Billing Mean Percentage Philanthropy/Foundations/Grants Mean Percentage Hospice Contracts Mean Percentage Stipends Mean Percentage Home Care Agency Mean Percentage Not Funded Mean Percentage Other Mean Percentage