Current status Health-RI

Transcription

1 Gerrit Meijer, co-chair , Utrecht, The Netherlands Current status Health-RI

2 The problem Research Prevention/cure/care Innovation

3 The cause: not technological, but social, cultural & organizational FRAGMENTATION of data sample collections image collections regulations software tools research initiatives funding expertise etc.

4 Health-RI is the solution to todays challenges in the Health research environment Challenges and Issues Opportunities and Solutions Fragmentation of infrastructures and funds A single top-of-the-bill infrastructure Infrastructures providers and researchers operate in separate worlds Strong collaboration between all stakeholders The promise of PM&H is not delivered A learning healthcare system Lack of reproducibility of research outcomes Implement FAIR data stewardship Reward system for scientists conserves the innovation gap Change incentives to reward sharing Return-on-investment of research is insufficient Coordination of an investment agenda Major investments are done by local governments Shared infrastructure under inclusive governance

5 Now is the time to act 300 million initiative Launched with a $215 million investment in the President s 2016 Budget the Swiss Government has allocated a total of CHF 68 million to SPHN

6 Actions taken to become the leading Dutch infrastructure for health research Created endorsement Development of business plan Q Q Q Q Q Q Q Q Q Q Q Vision document Joint annual meeting Health-RI conference 2015 Stakeholder meeting 2016 Health-RI conference 2016 Temporary Health-RI governance Website with animation video Funding TraIT2Health-RI Stakeholder meeting June 2017 Collaboration NWO call Stakeholder meeting October 2017 Health deals Start Health-RI

7 Health-RI will provide shared services and acts as the collective voice Provide shared services Act as a collective voice Data Tools Facilities

8 Health innovations support the citizens journey mental health primary healthcare healthy youth environment & health prevention healthy ageing personalized medicine e-health self management big data food & health learning healthcare system value based healthcare closing the innovation gap

9 Health-RI services and activities will facilitates the entire research process Research Process Define research question Experimental design Access to data & samples Data generation Analysis Translation & dissemination Improved health Health-RI actions Operational level (platform services) Tactical level (connecting the network) Strategic level (transforming the system) The Health-RI platform will offer researchers solutions-on-demand for each step of the research process

10 Health-RI offers solutions-on-demand Research Process Define research question Experimental design Access to data & samples Data generation Analysis Translation & dissemination Improved health Health-RI actions Operational level (platform services) Tactical level (connecting the network) Strategic level (transforming the system)

11 Health-RI offers solutions-on-demand Research Process Define research question Experimental design Access to data & samples Data generation Analysis Translation & dissemination Improved health Health-RI actions Catalogue data, images & samples Operational level (platform services) Tactical level (connecting the network) Strategic level (transforming the system)

12 Catalogue of data, samples and images

13 Health-RI offers solutions-on-demand Research Process Define research question Experimental design Access to data & samples Data generation Analysis Translation & dissemination Improved health Health-RI actions ELSI Servicedesk Operational level (platform services) Tactical level (connecting the network) Strategic level (transforming the system)

14 ELSI Servicedesk

15 Health-RI offers solutions-on-demand Research Process Define research question Experimental design Access to data & samples Data generation Analysis Translation & dissemination Improved health Health-RI actions Catalogue Operational level (platform facilities services) & expertise Tactical level (connecting the network) Strategic level (transforming the system)

16 Overview expertise and facilities

17 Health-RI offers solutions-on-demand Research Process Define research question Experimental design Access to data & samples Data generation Analysis Translation & dissemination Improved health Health-RI actions Operational level (platform services) Toolkit Tactical level (connecting the network) Strategic level (transforming the system)

18 Toolkit

19 Health-RI activities to transform the system Research Process Define research question Experimental design Access to data & samples Data generation Analysis Translation & dissemination Improved health Health-RI actions Operational level (platform services) Tactical level (connecting the network) Strategic level (transforming the system)

20 Health-RI activities to transform the system Research Process Define research question Experimental design Access to data & samples Data generation Analysis Translation & dissemination Improved health Health-RI actions Implement FAIR Operational level (platform services) Tactical level (connecting the network) Strategic level (transforming the system)

21 Implement FAIR in health research

22 Health-RI activities to transform the system Research Process Define research question Experimental design Access to data & samples Data generation Analysis Translation & dissemination Improved health Health-RI actions Personal Health Train Operational level (platform services) Tactical level (connecting the network) Strategic level (transforming the system)

23 Personal Health Train

24 Health-RI will build on existing infrastructures and attract new partners Health-RI ecosystem >70 stakeholders ? Network Health-RI inclusive network? Health-RI organization Initiatives converge

25 The Health-RI governance is inclusive General assembly Chambers Citizens / patients Industry Funders Health insurers Users Contributors Unlimited number of representatives Government & regulators Healthcare Medical research institutes General research institutes Strategic committee Representatives from each of the 10 chambers Supervisory board 4 members from citizens / patients, funders, users and research institutes chambers Managing board Operational teams

26 The Health-RI governance is effective and efficient General assembly Chambers Citizens / patients Industry Funders Health insurers Users Contributors Unlimited number of representatives Government & regulators Healthcare Medical research institutes General research institutes Strategic committee Representatives from each of the 10 chambers Supervisory board 4 members from citizens / patients, funders, users and research institutes chambers Managing board Operational teams

27 NL Personalized medicine & health research budgets sum up to 500M - Health-RI will cost 5% Health research infrastructure financing agenda Annual total funding for health research (~ 500 M) Infrastructure funds (~ 30 M) Health-RI fee-for-service and direct funds from noninfrastructure funds Direct funding from infrastructure funds

28 Three income sources ensure a sustainable and effective execution of the strategic agenda Fee for service ± 25% Direct funding ± 55% In-kind contribution ± 20% Health-RI ( 25 million) ± 90% ± 5% ± 5% Direct service related expenses Indirect services related expenses Other expenses

29 Next steps Together with the stakeholders: Formalize Health-RI governance Work out shared funding strategy for Health-RI With the goal to establish Health-RI organization in Q Q Q Q Q Q Q Q Stakeholder meeting June 2017 Stakeholder meeting October 2017 Health-RI conference 2017 December 8th Establish Health-RI organization

30 That s why! basic research > translational science> prevention/cure/care

31 Let s build Health-RI together

32 , Utrecht, The Netherlands Health-RI 2017