Contents. Introductory letter..2 Role description.3 JDRF UK s Strategic Plan FY18/20 6 JDRF UK s Annual Accounts FY17 9

Transcription

1 Contents Introductory letter..2 Role description.3 JDRF UK s Strategic Plan FY18/20 6 JDRF UK s Annual Accounts FY17 9 1

2 JDRF 17/18 Angel Gate City Road London EC1V 2PT t: f: President HRH The Duchess of Cornwall Chairman James Cripps Chief Executive Karen Addington Dear Candidate, On behalf of JDRF s Succession and Development Committee, thank you for your interest in becoming Chair of JDRF UK and helping us fulfil our mission of curing, treating and preventing type 1 diabetes. We are part of a global network of organisations and have a clear strategic vision, a motivated and professional staff team, good governance systems and processes, and big ambitions. We are seeking a Chair who will work in partnership with our award winning Chief Executive to increase funding to research, influence policy changes, build our networks, forge new relationships and be an ambassador and spokesperson for our work. Enclosed, you will find the Chair s role description and JDRF s strategy overview for FY I am sure you will also want to review our website jdrf.org.uk and may also find it helpful to look at the Charity Commission guidance at If, having fully considered the above, you would like an informal conversation about the role please contact Helen Pegg, Head of Governance Portfolio at hpegg@jdrf.org.uk or on Helen will then arrange a time for you to discuss your questions with Karen Addington, our Chief Executive. If you would like to apply for the role please the following to Helen at hpegg@jdrf.org.uk or send a hard copy to her at JDRF, 17/18 Angel Gate, City Road, London, EC1V 2PT Your Curriculum Vitae A supporting statement outlining how you meet the requirements of the person specification, using examples where possible, plus information on what you would bring to the role and your motivation for applying. Juvenile Diabetes Research Foundation Ltd (JDRF) is a registered charity in England and Wales (No ) and in Scotland (No. SC040123). A company limited by guarantee (England No ). Registered office: 17/18 Angel Gate, City Road, London EC1V 2PT Please note, the closing date for applications is Thursday 8 February with interviews to take place in the first and second week of March. Preferred candidates will then be invited to an informal meeting with a former JDRF Chair and our Chief Executive at the end of March/early April. Thank you again for your interest in supporting JDRF and I look forward to receiving your application. Yours sincerely, Karen Loumansky Chairman, JDRF Succession and Development Committee 2

3 JDRF Chair of the Board: Role Description POSITION TITLE JDRF CULTURE, ETHICS AND BEHAVIOUR PURPOSE OF ROLE TIME COMMITMENT SKILLS REQUIRED BENEFITS Chair JDRF is the type 1 diabetes charity, part of a global network working to cure, treat and prevent the condition through the support of medical research. We currently employ 62 FTE staff at our Head Office in London and across seven regional UK locations. For further information please refer to: N.B. Under Current Vacancies, you will find a link to this document, complete with a copy of the Annual Report and Accounts FY17. Board Directors and JDRF staff work together to further the organisation s work and find the cure for type 1. We do this in a collaborative, open, honest and objective way, demonstrating integrity and personal accountability, working in accordance with the Nolan Principles of Public Life. Work in partnership with JDRF s CEO to achieve the aims of the organisation and optimise the relationship between Board Directors, staff and external stakeholders. Act as a sounding board for the Chief Executive and Senior Management Team and work closely with them and JDRF s Treasurer to oversee and advise on the efficient administration of JDRF in accordance with its governing documents and the requirements of the Charities Act 2011 and the Companies Act Provide effective and authoritative leadership and direction to the Board and its committees enabling Directors to fulfil their responsibilities for the overall governance and strategic direction of JDRF. Manage the relationship with the international JDRF network alongside the CEO, Treasurer and Senior Management Team. Act as a motivated and enthusiastic ambassador and spokesperson at a range of external functions, meetings and events One three-year term that may be extended by mutual agreement for a further three years. Approximately two days per month although this is flexible. Half-day induction on appointment. The Board meets quarterly in central London with one away day and Directors will be invited to key JDRF events throughout the year. Attendance at the JDRF International Chair and CEO summit in the USA, usually in January Strategic leadership. Commercial acumen. Strong communication, networking and advocacy skills. Organisational strategy and Board governance. Significant experience of chairing meetings and events. Curious and questioning mind; incisive decision making You will lead an organisation delivering meaningful impact for people living with type 1 diabetes and their families, which is part of a world-leading international network of research charities. Through our work you will have chance to meet many of those involved with our work; including researchers, our patrons, our high profile supporters and our President, HRH The Duchess of Cornwall; at research institutes, family events and at JDRF s calendar of special events and galas. 3

4 KEY RESPONSIBILITIES Build Strong Relationships The relationship between our Chair and Chief Executive is the most important one at JDRF. Ensure a strong, effective and constructive partnership is forged and regular contact maintained whilst respecting the boundaries which exist between the two roles. Alongside our Treasurer, conduct the Chief Executive s annual appraisal and remuneration review and ensure she has the opportunity for professional development and appropriate external professional support for her role. Manage the Board Provide strong and dynamic leadership to the Board, ensuring Board Directors and committee members fulfill their given roles, and JDRF has maximum positive impact for its beneficiaries and achieves its charitable objectives. Enthuse and Inspire Ensure Board Meetings are well planned and reflect the needs of the organisation and responsibilities of the Board. Chair Meetings effectively and efficiently, bringing impartiality and objectivity to the decision making process whilst ensuring Directors are fully engaged and decisions are taken in the best interests of JDRF with the Board taking collective ownership. Ensure agreed actions are implemented and provide motivation and feedback. Governance and Oversight Ensure JDRF s Articles of Association are followed and that the rules, regulations and policies prescribed by the Board of Directors are the most effective and thereafter endorsed, supported and followed. COMPETENCIES Proven ability to build constructive relationships with key stakeholders. Driven with the ability to manage key aspects of a project Leadership, motivation and team building skills People management experience Strategic and analytical thinker who is able to address complex challenges. An ability to challenge, influence and facilitate decision making and ensure appropriate constructive behaviours. Strong interpersonal communication and influencing skills together with professional acumen and personal impact to successfully engage and influence a range of senior stakeholders. Demonstrate integrity, honesty and high ethical standards. Have an understanding of, and commitment to, accountability, probity, openness, equality and balance. Conduct annual appraisals of Directors and the Board and develop shared knowledge and capability whilst resolving any conflicts and encouraging change where and when necessary. With the Succession and Development Committee, ensure the Board incorporates the right balance of skills, knowledge and experience. Represent the interests of JDRF UK with international affiliates. External Relations Act as a motivated and enthusiastic ambassador and spokesperson for JDRF representing us at a range of Be an inspiring leader who demonstrates credibility and gravitas in their actions and behaviours. Absorb and communicate JDRF key messages to 4

5 external functions, meetings and events. Network amongst peers seeking new contacts for JDRF; and facilitate change and address any potential conflict with external stakeholders. ADDITIONAL DIRECTOR RESPONSIBILITIES Support JDRF staff in their work to attain our strategic goals. external and internal audiences Understanding and knowledge of JDRF, the charity sector and the opportunities and challenges that are faced. Experience of income generation is desirable. 5

6 JDRF s Mission and Objectives FY18-20 Karen Addington Chief Executive Our Vision and Mission The vision of JDRF is a world without type 1 diabetes and our mission is to eradicate type 1 diabetes and its effects for people in the UK. To achieve our mission we: Fund research to cure, treat and prevent type 1 diabetes Work to accelerate the pace of research and the delivery of treatments in the UK Give support and a voice to children and adults living with type 1 and their families FY15-17 Results FY15-17 has been a period of growth and increased delivery in every area of JDRF s operations. In this period: We will spend 2.2m on research in FY17, which is above target 11 million of EU funding has been committed to active type 1 diabetes projects Three research fellows have received the JDRF UK Research Communication Award Just two partnerships have yielded the target of over 1.5million per year of partnership funding into type 1 research. On its own, our partnership with The Wellcome Trust supporting genetics research in Cambridge brings 8million into type 1 research over five years The launch of Type 1 Research Today which tracked type 1 research funding across the UK and showed an increase in research funding by Government since 2012 There has been Diabetes All Party Parliamentary reviews into education and variations of care NICE guidelines have been issued on sensor augmented pumps following JDRF input JDRF, Diabetes UK and INPUT authored guidance on access to CGM for families and adults A new network of community engagement coordinators has launched across the country JDRF university and pregnancy toolkits and the new schools pack have launched, as has an e-learning module for teachers and school staff supported by us We have increased media coverage, including 93 pieces of national coverage in FY17, and enhanced social media engagement every year We have launched a new website leading to increased time on site, page visits and an increase in donations and transactions We are forecasting to achieve the 6million target of sustainable income in FY17 FY18-20 Context for Strategy Development Through a process of volunteer and staff consultations, stretching objectives that will deliver progress towards JDRF s vision of a world without type 1 diabetes have been set for FY We will increase research funding in years where income increases. To progress towards our mission, we will also continue to increase the effectiveness of our work in research partnerships, advocacy, awareness, support and information, and will also need to increase our free reserves. To achieve this, new strategies and tactics will be explored in research partnerships, including developing UK specific funding mechanisms, large scale cross-disease partnerships, and alternative funding sources to replace EU funding that may be lost. These are vital as we believe 6

7 that our own research funding can be equalled or even surpassed by these research collaborations. We recognised the important role that JDRF is playing internationally in influencing market access to speed up access to new treatments and technologies. This is a gap that exists in the UK and we will prioritise increasing JDRF UK s influence in this area. Board and staff recognised the need to invest in areas of our fundraising portfolio that have significant growth potential, particularly individual giving and legacies. There was agreement in 2016 that the 1:3 fundraising ratio, which was set to act as a guide for investment choices during a recession, should be relaxed where we believe that increased investment may accelerate progress in achieving mission or growing net income. We also recognised the need to invest in staff to achieve our mission. We must value, develop and reward them in order to retain and develop their skills and new JDRF initiatives. JDRF should consider the threats to key staff and where in the organisation the relationships are more important; this is where we need longevity. We also need to increase management capacity and recruit more experienced staff. Key strategic points for FY18-20 Research funding and Research Partnerships Aim for a cumulative target for research over the next three years of 7.5 million. Develop multi-year research funding partnerships, building on UK strengths, leveraging 6 million over three years Engage in small-medium scale partnerships to stimulate training and development of type 1 diabetes researchers in the UK, totalling at least 250,000 over three years Research advocacy and treatment delivery Influence policy changes that will affect JDRF s UK based research in the next five years, most notably our exit from the European Union and the merging of the budgets of the Research Councils to form UK Research and Innovation (UKRI) Build new networks and relationships in Scotland that will support new funding partnership initiatives Develop a new patient access strategy to help us be more influential and effective in treatment funding decisions made by the NHS Support, information and awareness Increase acquisition of supporters most likely to lead to achieving JDRF s income targets Ensure JDRF has relevant support and information for families of children with type 1 at: diagnosis, schools, transition of schools, clinic transition (paediatrics into adult care), university and information for carers Ensure JDRF has easily accessible relevant support and information for adults at: transition, adult diagnosis, university, workplace, and pregnancy Investigate increased peer to peer community engagement in the type 1 community Build staff and volunteer networks to reach and engage more families and adults through clinics and other routes around the country 7

8 Income Aim to raise a cumulative total income in excess of 20million, reaching circa 7.5 million per year by FY20 Aim clear and deliverable growth strategies for each component part of fundraising activity Invest in areas of fundraising that will give us the greatest chance of long term financial growth and stability this may include investment in new areas as well as divesting ourselves of activities with poorer returns Access new and existing technologies in order to deliver and process higher volumes of voluntary income in the most efficient and effective way. Organise ourselves in ways that enable collaborative and integrated working in order to maximise the chances of fundraising success. Human Resources Recruit staff with the right skills and attitude by identifying and describing the skills needed for particular roles and ensuring an effective recruitment Staff will understand and work in line with JDRF culture and core values, and be aware of what expectations the organisation has around their delivery Staff will understand what professional and personal development looks like for them at JDRF and what JDRF expects of them. JDRF will ensure that there are structures and policies that meet the people needs of the departments across JDRF People should be encouraged to feel positive about working at JDRF, by embedding the culture and values from induction onwards. Reward, recognition and career development should be considered as well as other motivators 8