HSE National Health & Social Care Data Dictionary And It s Role in Data Management

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1 HSE National Health & Social Care Data Dictionary And It s Role in Data Management Mr Martin Tully Dr Pamela Hussey Muhammad Zubair Qureshi Information Architecture Lead EA OoCIO HSE Centre eintegrated Care DCU CTO HiveWorx

2 Information Architecture 2

3 Standards Why Bother?

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5 Irish NHSCDD The Rule Book for, Data Quality, Consistency, Comparability, Integration, & Interoperability

6 The Building Blocks of Connectivity to support Sláintecare HSE NHSCDD - Progress Activity Standards Administrative/Descriptive Standardised Datasets for Reporting e.g. NTPF, HPO, HIQA, NBIU, OPS MDS, IHI, Health Care Facility Classifications Technical Standards Structural Metadata Identity - Patient History Providers Facilities Quality Standardised Building blocks for Integrated Care e.g. OpenNCP (Summary Care Record), OpenNCP (eprescribing), Service Directory, Geo-Spatial Catalogues, Safeguarding Service Lists, Dementia Registry Definitions Relationships Rules Dependencies Definitions Relationships Rules Dependencies HSE NHSCDD Data Quality Governance Standardisation

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9 NHSCDD Training DCU 6 th December and Quarterly NHSCDDGB Operational Sláintecare section National Data Strategy 'Provide for improved information architecture, including standards, information and identity to underpin the delivery of integrated care.'

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11 HSE NHSCDD CeIC DCU Progress To Date Dr Pamela Hussey

12 Linking with Global Agenda The World Health Organisation Framework for people centred integrated care services is used to inform the overall vision and focus for the CeIC activity. Strategy 1 Empowering and engaging people in communities through education and focused discussion PAG IAG in flight Strategy 3 Reorientating the model of care towards defined Slaintecare service priorities, optimising harmonisation of data using state of art health informatics standards Strategy 4 Co-ordinating services within and across sectors is progressing through research proposals in development with patient groups and industry (Innovation2.0). Key principles empowerment and engagement of citizens, transparency in working approach and cultivating and enabling Self Management Support ( WHO, 2016 link )

13 Progress on development of infrastructure IA Operational Creation of Core Catalogues Implementation Research MDRF phase two development Ontological mapping of Identity Strategic Planning Horizon Enterprise Ireland Adapt FI SFI

14 Important Urgent Matrix Operational Implementation Research Strategic Research

15 Heterogeneous Data Sources & IOS Slainte Core Open NCP Directory Services Evolving MDRF and Ontological Mapping Determining dynamic and static metadata

16 Promoting Data Value, Data Quality Catalogues for IOS (Open NCP) Catalogues for SPT Ontological map aligned to ISO and MetaRep ISO/DTS 21526

17 ISO III79 and ISO/DTS MDRF Extract

18 Process of alignment with ehealth planning HSCNDD Governance Group meetings in progress Meetings with PMO s in CeIC on existing requirements Review of core catalogues and focused training on foundation groups Catalogues created and tested with CeIC and PMO s now in flight Scoping of key properties from catalogues for optimisation of interoperability e.g Oids, namespace, value sets Note not being part of EpSOS has been an expensive oversight in terms of our ehealth infrastructure for interoperability.

19 IOS Catalogue Screen Catalogues Core catalogues defined for interoperability Examples of our approach to creating core based on To be Architecture and EU CEF ehsdi Testing Conformance Data Quality Data Value - Solid Ground Infrastructure Do we want an early bird or A La Carte..

20 IOS Catalogue Screen Shot 2 Open NCP properties defined Knowledge Transfer IHE Europe Source : HiveWorx XIGT

21 Drawing Tool Document Source Actor Detail Source : HiveWorx XIGT

22 Ontology Model for Identifiers Defining ISO III79 and ISO/DTS as Web Ontology Language (OWL) Dr. Kris McGlinn Adapt Centre TCD Fig. x: OWL Model visualised Protégé Fig. 1: OWL Model in Protégé

23 Training manual, learning outcomes and activities starting December 6 th 2018

24 Agile Co-design Approach based on Standards to Optimise Interoperability & Build Capacity

25 Conclusion To achieve clean data meta data registries and data standards are required. The CeIC in partnership with the IA are working on building capacity within HSE to set in place a core interoperability framework to support ehealth Ireland. This cant happen in isolation standards need to be instigated or a direct impact on transformation will occur. Decisions need to be made and implemented. Identity is the first block