May 22, Dear Marcia and Jeff,

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1 May 22, 2012 CHAIRPERSON Dear Marcia and Jeff, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Audit and Risk Management Committee Charter and Work Product for the Program Year is as follows: Recommend to the Board the appointment of, and with Board approval, negotiate the agreement with the Independent Auditor. Agreement to include national and chapter audits and reviews for program year. Reviews the works performed by the independent auditor and identify and resolve with the Auditor and Kellen Company any issues not covered in the audit before it is presented to the Executive Committee and the Board for their respective reviews and approval. Working with MGFA s Chief Executive, Treasurer and the Kellen Company controller, review and advise the on MGFA s compliance with Financial Reporting, Accounting, and Internal Control policies and make recommendations for change as appropriate Review and advise the Board on the completeness and accuracy of reports and financial information submitted by MGFA to all governmental bodies or the public. Distribute and ensure that all Conflict of Interest statements are filed and reviewed in accordance with MGFA s Policies and Procedures. Review and update as appropriate the list of all those required to file a conflict of interest statement with MGFA. Review current conflict of interest form with outside counsel to ensure it meets the Foundation s needs. Review with MGFA s Chief Executive and the Chairman of the Board any potential conflict of interest by the October 3, Board Meeting. Review all insurance policies for coverage and cost on an annual basis making recommendations to the Board as appropriate.

2 Review, and make recommendations to the Board as appropriate, for changes to MGFA s policies and procedures with respect to risk management; including the financial accounting and risk exposures and the steps management needs to take to control them. Monitor compliance with procedures necessary to ensure the integrity, control and access of all MGFA electronic and paper data including but not limited to financial data, contributors, and membership lists. Working with the Chief Executive, perform a yearly review of the internal policies of Kellen Company as they apply to or impact MGFA and report to the Board any areas of potential conflict with MGFA policies. Review NHC Standards of Excellence and BBB Wise Giving Alliance standards and compare with MGFA Bylaws, Policies and Procedures to ensure that MGFA remains in compliance with same, making recommendations for change as appropriate. In addition, the committee should continue to meet all those responsibilities as described in the MGFA Bylaws and Policies and Procedures. The committee should keep in mind that all recommendations must include the input of all related/relevant committees and chapters (if directly impacted) before submission to the Chief Executive for inclusion on the Board agenda. Tor will continue to work with you in facilitating the Audit and Risk Management Committee meetings and will take the minutes for the committee.

3 CHAIRPERSON May 22, 2012 Dear Sue, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Board Development and Recruitment Committee Charter and Work Product for the Program Year is as follows: At the October 3, 2012 Board meeting, engage the Board in a discussion of the importance of recruiting new Board members and their role and accountability in the process. Conduct the Annual Board Self-Assessment. Present the results and trend analysis to the Board at its May 8, 2013 meeting. Engage the Board in a discussion of potential changes and how to improve the meetings. Using the MGFA Board Orientation Program as a template, develop/tailor an orientation program that is transferable to the chapters (i.e. a program in a box ) for their use in orienting their Boards. The package should include plans for orientation webinars or a Podcast. Develop, in partnership with the Chapter Relations Committee, a generic board recruitment program (i.e. a program in a box ) for use by the chapters in developing recruitment strategies for their boards, with a focus on the next generation of leadership. This should include a Podcast or Webinar for chapter training purposes. In addition, the committee should continue to meet all those responsibilities as described in the MGFA Bylaws and Policies and Procedures. The committee should keep in mind that all recommendations must include the input of all related/relevant committees and chapters (if directly impacted) before submission to the Chief Executive for inclusion on the Board agenda.

4 Martha will work with you in facilitating the Board Development and Recruitment Committee meetings and will take the minutes for the committee. Chairperson

5 May 22, 1012 CHAIRPERSON Dear Marie, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Bylaws, Policies and Procedures Committee Charter and Work Product for the Program Year is as follows: Conduct a review of the MGFA s Bylaws, Policies and Procedures for relevance and enforceability and recommend to the Board, for its consideration at its February 2, 2013 meeting, any changes necessary for the efficient and effective management of MGFA and its Chapters. Determine what financial information is needed from the chapters to enable MGFA to generate its consolidated financial statement and calculate chapter assessments. Present rationale and recommendation to the Board at its February 2, 2013 meeting. Specifically look at the advisability of using the IRS 990 as the datagathering instrument as well as the June 30 th filing deadline. Present rationale and recommendation to the Board at its February 2, 2013 meeting. Present to the Board for its approval at its October 3, 2012 meeting a MGFA Grant Review and Funding Process that includes the M/SAB review process. Present to the Board at its October 3, 2012 meeting a draft Chapter Affiliation Agreement for discussion with final approval at the February 2, 2013 Board meeting. In addition, the Committee should continue to meet all those responsibilities as described in the MGFA Bylaws, Policies and Procedures. The Committee should keep in mind that all recommendations must include the input of all relevant committees and the chapters, when they are directly impacted, before submission to the Chief Executive for inclusion on the Board agenda.

6 Tor, will work with you in facilitating the committees meetings and will take the minutes for the committee. Chairperson

7 May 22, 2012 CHAIRPERSON Dear Jennifer, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Chapter Relations Committee Charter and Work Product for the Program Year is as follows: Develop a set of quantitative metrics for evaluating individual chapters and their programs on a yearly basis. These metrics should be presented to the Board at its February 2, The metrics should address the following areas at a minimum: o Outreach o Education o Public Awareness o Support Group Growth o Demographics o Sustainability Review compliance/non-compliance provisions in the Bylaws and Policies and Procedures and recommend changes as appropriate. Any recommendation must be in writing and fully discuss why the change is necessary and the recommended specific language of the change. All such recommendations must be presented to the Board at its February 2, 2013 meeting. Review all reports (Chapter Questionnaire, due January 31 and Chapter Financial Package, due June 30) required by the National Office for the purpose of streamlining and rationalizing them as necessary. Develop a list of chapter responsibilities as specified in. MGFA s Bylaws Policies and Procedures. Review those responsibilities and recommend changes as appropriate to the Board for its consideration. Any recommendation must be in writing and fully discuss why the change is necessary and the recommended specific language of the change. All such recommendations must be presented to the Board at its February 2, 2013 meeting.

8 Develop and prepare for distribution to the chapters, a calendar/chart of all dates and requirements specific to chapters. Develop specific recommendations for how to improve the chapter resource page, and submit those recommendations to the communications committee for their input and final recommendation to the Board In addition, the committee should continue to meet all those responsibilities as described in the MGFA Bylaws and Policies and Procedures. The committee should keep in mind that all recommendations must include the input of all related/relevant committees and chapters (if directly impacted) before submission to the Chief Executive for inclusion on the Board agenda. Martha, will continue to work with you in facilitating the Chapter Relations Committee meetings and will take the minutes for the committee. Chairperson

9 May 22, 2012 CHAIRPERSON Dear Janet, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Communications Committee Charter and Work Product for the Program Year is as follows: Awareness 1. Continue to explore, with input from the Ad Hoc Committee on Outreach, the use of Social Media by the National Organization as a way to generate public awareness and drive individuals to the National website for information on MG. 2. Review and analyze 2012 June Awareness campaign and make recommendations for improvement at the October 3, 2012 Board meeting in Orlando. 3. Work with both the MSAB and NAB to develop a comprehensive list and description of current MG and related neuromuscular-disease research and clinical trials as well as a process by which to keep it up to date for inclusion on the MGFA website. 4. Continue to monitor legislative initiatives and other advocacy opportunities and make recommendations to the Board as appropriate. Branding 5. Recommend to the Board additional strategies and specific project initiatives to enhance MGFA s image. 6. Determine best communication and distribution strategy with CRC for Copyright and Trademark Compliance Monitoring Procedures.

10 Website 7. Continue to monitor website analytics and recommend enhancements. 8. Monitor currency of materials on the web site and recommend changes as needed. 9. Work with the Chapter Relations Committee, to develop guidelines and minimum criteria for Chapter web pages to meet in order to be hosted on the MGFA National Website. 10. Work with CRC to optimize the chapter resource pages. In addition the committee should continue to meet all those responsibilities as described in the MGFA Bylaws and Policies and Procedures and established/ongoing programs such as the E- newsletter, Foundation Focus and June Awareness. The committee should keep in mind that all recommendations must include the input of all related/relevant committees and chapters, if directly impacted, before submission to the Chief Executive for inclusion on the Board agenda. Dana will continue to work with you in facilitating the Communications Committee meetings and will take the minutes for the committee. Chairperson

11 May 22, 2012 CHAIRPERSON Dear Ed, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Finance Committee Charter and Work Product for the Program Year is as follows: Work with the national office staff and committee chairs to develop operating and program budgets for FY The first draft of these budgets should be presented to the Board at its October 3, 2012 meeting for review and comment. A final budget should be presented to the Executive Committee at its December 7, 2012 meeting with final approval from the Board at its February 2, 2013 meeting. Review the financial statements and budget monthly and report to the Executive Committee on any issues identified and recommend adjustments as appropriate. Provide revised full year projections as needed. Work with the Audit and Risk Management Committee to review relevant reports or financial information submitted by MGFA to any governmental body or the public. Work with the Audit and Risk Management Committee and the national office staff to ensure that any and all issues identified in the 2011 audit are addressed. Work with MGFA s Chief Executive and the Kellen Company Controller to insure that the Fiscal Year 2012-year end financials are available in draft form for presentation to the Board for its review at the February 2, 2013 meeting. In addition, the committee should continue to meet all those responsibilities as described in the MGFA Bylaws and Policies and Procedures.

12 The committee should keep in mind that all recommendations must include the input of all related/relevant committees and chapters (if directly impacted) before submission to the Chief Executive for inclusion on the Board agenda. Tor will continue to work with you in facilitating the Finance Committee meetings and will take the minutes for the committee. Chairperson

13 May 22, 2012 CHAIRPERSON Dear Ed, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Investment Committee Charter is as follows: The Investment Committee is a standing committee of the Board of Directors. The Committee assists the Board of Directors in fulfilling its oversight responsibility for the investment assets of the Foundation. The Committee is responsible for formulating the overall investment policies of the Foundation, subject to approval by the Board, and establishing investment guidelines in furtherance of those policies. The Committee monitors the management of the portfolio for compliance with investment policies and guidelines and for meeting objectives over time. The Board Chair appoints Committee members. Committee membership shall consist of the Board Chair, the Finance Committee Chair and at least two members who are generally knowledgeable in investment and financial matters, including at least two directors. The Committee shall report directly to the Board at each scheduled Board meeting, reviewing investment performance against Investment Policy objectives, including actual returns versus the Foundation s absolute return objective. The Committee s principal responsibilities are to see that the Foundation s Investment Policy is followed, modified and executed appropriately so that the long-term grant- making and programmatic goals of the Foundation are supported. This includes: 1. Setting investment policies (subject to approval of the Board) and guidelines, including policies and guidelines regarding asset classes, asset allocation ranges, and prohibited investments. In addition (subject to approval of the Board) the Committee will determine whether to utilize leverage and if so the level of such leverage relative to the investment 2. Approve investment and reinvestment of the funds of the Foundation. (subject to approval of the Board) The Committee may delegate investment functions to officers and employees of the Foundation, and to

14 external investment managers. The Committee (subject to approval of the Board) may remove investment managers if necessary. 3. Monitoring the management of the funds by reviewing written reports from investment managers / consultants and by discussions with investment managers / consultants at Committee meetings that focus on the primary determinants of returns, including asset allocation and investment strategy. 4. Evaluating investment performance of the fund based on a comparison of actual returns with the Foundation s absolute return objective, and with such other benchmarks as the Board or Committee may from time to time select. The evaluation will take into account compliance with investment policies, guidelines and risk levels. 5. Attend to such matters as the Chair and or the Board may from time to time determine. Chair

15 May 22, 2012 CHAIRPERSON Dear Gil, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Medical, Scientific Advisory Board Charter and Work Product for the Program Year is as follows: Develop and recommend to the Board for its approval, a process to create and keep current an MGFA Physician Referral List. This should include standards by which physicians are evaluated for inclusion on the list and the process to do so. You should work with the Bylaws, Policies and Procedures Committee to ensure review by outside counsel. This recommendation should be presented to the Board at its May 8, 2013 meeting. Work with Communications Committee to develop a comprehensive compilation and brief description of current MG related research by all MGFA / MSAB members and the MG community at large from research symposium and annual professional meetings sponsored by MGFA and other organizations for posting on the website. Put in place a process to update on a yearly basis. Work with Communications Committee and staff to provide articles of interest to patients, donors and healthcare professionals for the Foundation Focus, monthly website updates, and E-Newsletter. Develop current MG patient informational materials. Review upon request all MGFA medical and scientific materials, including but not limited to, print and electronic media and programs on an evergreen basis. In addition, the M/SAB should continue to meet all those responsibilities as described in the MGFA Bylaws and Policies and Procedures. The M/SAB should keep in mind that all recommendations must include the input of all related/relevant committees and chapters (if directly impacted) before submission to the Chief Executive for inclusion on the Board agenda.

16 will continue to work with you in facilitating the M/SAB meetings and will take the minutes for the committee. Chairperson

17 May 22, 2012 CHAIRPERSON Dear Wilma, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Nurses Advisory Board Charter and Work Product for the Program Year is as follows: Immediately, upon release from AANN of Clinical Practice Guidelines for Nurses, work with the National Office to promote and distribute the guidelines. Complete CEU program for nurses on myasthenia gravis to be offered on the MGFA website. Present a time line for completion of the CEU Program at the October 3, 2012 Board meeting. The program should be completed and on the web in time for the May 2013 National Conference in Miami. The program should meet the requirements of each State and the Canadian Provinces. Identify initiatives in support of the NAB mission that can be written into grant applications to be prepared by the National Office. These initiatives should be sent to the National Office by July 31, 2012 In addition, the NAB should continue to meet all those responsibilities as described in the MGFA Bylaws and Policies and Procedures. The NAB should keep in mind that all recommendations must include the input of all related/relevant committees and chapters (if directly impacted) before submission to the Chief Executive for inclusion on the Board agenda. Dana will work with you in facilitating the NAB meetings and will take the minutes for the committee. Chairperson

18 May 22, 2012 CHAIRPERSON Dear Sue, In our ongoing efforts to meet the goals we established in the MGFA Strategic Plan, the Resource Development Committee Charter and Work Product for the Program Year is as follows: Identify and recommend to the Board at least one potential national program/event capable of generating new revenue streams for MGFA. Identify the key elements of each fundraising program; understand how they work, what makes them successful and what makes them sustainable. Review and analyze the program year donor giving patterns by categories, such as individual, MGFA Board, Foundations, Planned Giving and Corporations. This review and analysis should be presented at the February 2, 2013 Board Meeting. Monitor and report quarterly to the MGFA Board on donor giving patterns and as appropriate make recommendations on how to increase giving. Establish schedule for solicitation appeal letters and review letters before going to print. Provide chapter leaders with MGFA s schedule of appeal solicitation letters. In addition, the committee should continue to meet all those responsibilities as described in the MGFA Bylaws and Policies and Procedures. The committee should keep in mind that all recommendations must include the input of all related/relevant committees and chapters (if directly impacted) before submission to the Chief Executive for inclusion on the Board agenda.

19 Tor will continue to work with you in facilitating the Resource Development Committee meetings and will take the minutes for the committee. Chairperson