Section 1 Aims and objectives. Public involvement aims

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1 Patient and Public Invlvement/Engagement strategy fr the Natinal Institute f Health Research, Bristl Bimedical Research Centre (NIHR Bristl BRC) The BRC Public invlvement team, in cllabratin with ur public cntributr strategy grup, has develped ur Patient and Public Invlvement strategy at the NIHR Bristl Bimedical Research Centre (BRC). Tgether we have develped a visin that situates public invlvement at the heart f health research at the Bristl BRC. We believe that this is ethically the right thing t d and that public invlvement will imprve the quality and relevance f ur health research. Patient and Public Invlvement/Engagement purpse, aims and bjectives The purpse f this public invlvement and engagement strategy is t detail hw the aims and bjectives, develped frm ur visin, will be incrprated int the gvernance f the BRC and acrss its five central themes, Perinatal and Reprductive Health, Surgical Innvatin, Nutritin, Mental Health and Cardivascular Research. The strategy dcument is set ut in tw parts - Sectin 1 details the aims and bjectives f the strategy - Sectin 2 details hw the aims and bjectives will be delivered. Sectin 1 Aims and bjectives Public invlvement aims 1. T ensure that there is a strng public vice in the gvernance prcesses f Bristl BRC 2. T ensure that there is active public and patient invlvement in all the BRC research themes 3. T ensure that there is effective mnitring f public and patient invlvement in all five themes 4. T encurage the diversity f public cntributrs wrking with the Bristl BRC 5. T develp tls t carry ut n the jb assessment f PPI quality and utcmes Our public engagement aims are: 6. T prvide infrmatin abut pprtunities t be invlved in Bristl BRC research. 7. T supprt tw-way cnversatin between the public and researchers, prviding access t the evidence and infrmatin n which their care is based. 8. T supprt the disseminatin f research findings t nn-academic audiences 9. T create pprtunities where the public can input knwledge, ideas and experiences that may shape the future f research. Cllabratin fr delivery f Public invlvement Bristl BRC is in a strng psitin t deliver its aims and bjectives due t its cllabrative partnership with Peple in Health West f England (PHWE) ( PHWE is a reginal public invlvement netwrk, frmed in The cllabratin includes the West f England Academic Health Science Netwrk, the Lcal Clinical Research Netwrk West f England, CLAHRC West, and Bristl Health Partners wrking with the University f the West f England. PHWE members als wrk clsely with the Research Design Service 1

2 Suth West, lcal Healthwatch rganisatins, and the Health Prtectin Research Unit in Evaluatin f Interventins. Objectives Delivery f ur aims has been brken dwn int Shrt, Medium and Lng term bjectives. Shrt term T priritise the initial public invlvement needs f each f the BRC Themes. T establish where and hw the resurces available via ur strategic partner, PHWE, can best be utilised acrss the BRC. T establish the BRC s Public Advisry Grup (PAG) T establish a public invlvement/engagement training prgramme fr PhD students and researchers in the BRC. Medium term T establish plicies, prcedures and resurces t supprt the apprpriate and timely delivery f PPI/E T gather feedback n ur training prgramme. T develp and refine the prgramme t ensure ur training prgramme meets the needs f thse attending the curses. T develp apprpriate training t ensure BRC public cntributrs are able t undertake their rle cnfidently and effectively. Lng term T review and evaluate ur mdel f public invlvement/engagement and, based n the results, develp plans fr public invlvement/engagement in a ptential secnd five years f the NIHR Bristl BRC. T upskill researchers acrss the BRC t feel cmpetent t deliver gd quality PPI/E within their wrk Sectin 2 - Delivery plan fr Public invlvement/engagement The fllwing delivery plan details the ways in which ur shrt, medium and lng-term bjectives will be implemented. A. Actively wrk t embed invlvement in the wrk f Bristl BRC (meeting aims 1, 2, 3, 4, 5, 6, 7, 8, 9) The public invlvement team will wrk with thse researchers named as the public invlvement lead fr each given theme. Each researcher will attend a quarterly meeting with the PPI team t reprt n the PPI activity f his r her theme. This will als be an pprtunity fr the PPI team t wrk with the nminated researcher, t reslve issues r cncerns that may have develped within their wrk stream. The public invlvement team will prvide guidance, resurces and supprt (including supprt with grant applicatins, budget develpments, rle specificatins, recruitment, facilitatin, reprting and s n) t researchers and public cntributrs t carry ut effective public invlvement in their wrk. The public invlvement team will actively supprt, develp and facilitate invlvement activities in identified priritised prjects, as agreed with each research theme and the BRC Chief Operating Officer. 2

3 The team will supprt the rutine mnitring and reprting f invlvement activities and utcmes. The public invlvement team will prvide training n PPI/E. Specifically tw sessins per year fr researchers and ne sessin per year fr PhD students. This will ensure that ur researchers are upskilled and cnfident t undertake their wn PPI wrk, under the guidance f the PPI team. We will wrk t prvide inclusive pprtunities fr invlvement by building n planned and existing areas f wrk that fcus n specific cmmunities and grups as apprpriate t the needs f the BRC. B. Disseminate research findings t relevant service user and patient grups (meeting aims 4, 6, 7, 8, 9) T wrk with the BRC cmmunicatins team t ensure that research findings are accessible and written up in plain English. T cllabrate n the BRC website t ensure an accessible and useful site is develped. The website will hst recruitment pprtunities, link t resurces, news and events. It will describe the wrk being carried ut in BRC themes; prvide examples f invlvement and list pprtunities fr public cntributrs t get invlved with ur wrk. The website will be publicised widely t maximise ptential traffic ( We will als cntribute t the BRC twitter accunt (@BristlBRC) t ensure that ur wrk and invlvement pprtunities are disseminated as widely as pssible and explre ther methds f disseminating ur findings, fr example thrugh public lectures and wrkshps C. Prmte public awareness and interest in health research in ur area (meeting aim 7, 8, 9) Wrk with the Lcal Clinical Research Netwrk t develp and define the Research Ambassadr rle. Prmte researcher engagement with public facing events t prmte health research pprtunities D. Prvide apprpriate infrmatin abut pprtunities t be invlved in BRC research (aim 4, 6, 7, 8) Advertise pprtunities t becme invlved in research via ur varius netwrks f public cntributrs including ur frtnightly newsletter, Newsflash. ( These netwrks will help us t ensure that a diversity f peple are ffered the pprtunity t becme invlved with the BRC. Prvide pprtunities t supprt peple t access and use the evidence n which their care is based Delivering tw Using and Understanding research evidence wrkshps each year acrss the regin in cnjunctin with PHWE Develping web-based materials based n the Using and Understanding Research Evidence wrkshp fr the BRC and PHWE website t supprt peple t search fr evidence abut their care. E. Evaluate Public invlvement quality and utcmes in Bristl BRC (meeting aims 1,2,3,5) Wrking cllabratively with the University f the West f England and PHWE we will develp apprpriate prcesses with which t undertake nging quality assessments f the PPI wrk at the BRC. Develp resurces and vide f the training wrkshps n the BRC and PHWE website. Develp a simple prcess fr reprting PPI utcmes. 3

4 Structural infrmatin Leadership and reprting PPI at the BRC is delivered by an academic lead and a PPI lead, in cnjunctin with a public invlvement facilitatr. The BRC is a partner f PHWE and accrdingly ur PPI leads attend PHWEs strategy grup, which meets fur times a year. The academic lead attends the BRC mnthly Management meeting as required. Tw public cntributrs, drawn frm ur Public Advisry Grup, will als be invited t jin the Management Grup. Tw public cntributrs, drawn frm ur Public Advisry Grup will be invited t jin the BRC Scientific Advisry Bard. Resurces Public cntributrs Our greatest resurce at the Bristl BRC are ur public cntributrs. The supprt and develpment needs f ur current members is a central pririty fr ur team, as is the recruitment f future members. Cllabrative partnerships The BRCs cllabrative partnership with PHWE enables a prtfli f resurces that can be accessed and develped. Cllabrative wrk with this netwrk includes, Prviding a prgramme f learning and develpment fr public cntributrs and staff acrss the cllabratin Develping and prviding public invlvement resurces and plicies as apprpriate, fr example advice n payment rates fr public cntributrs. Develping a single cmmunicatins pint fr the West f England that can prvide infrmatin abut public invlvement and engagement pprtunities, events, and resurces, including shwcasing gd practice via a website and scial media. Supprting the building f the evidence base n public invlvement by develping tls and appraches t supprt evaluatin Finances We have a plicy and budget, which allws the Public invlvement team t pay fr the time and expenses f the public cntributrs invlved in each theme. Mnitring and review All BRC themes have an identified researcher acting as public invlvement liaisn with the public invlvement team. The Public invlvement team meets n a mnthly basis with the BRC Chief Operating Officer (Currently Hazel Phillips) t review prgress. The PPI/E Grup will set and deliver the strategy fr PPI/E, reprting prgress t Management Grup. The Grup will be chaired by the PPI Academic lead and cmprise the PPI Fellw, PPI Facilitatr, Theme PPI Leads and Cmmunicatins/Public Engagement Facilitatr. The BRC Directr, Deputy Directr and/r Chief Operating Officer will attend as required. The Grup will meet quarterly. 4

5 This strategy was written by the BRC PPI team, Assciate Prfessr Andy Gibsn, Dr Nreen Hpewell-Kelly and Mike Bell, in cllabratin with the BRC PPI strategy grup (Stacey Rberts, Vivienne Marsh, Edmund Brks, Katrina Plumb, Rsamund Syrett, Sarah Blake, Alan Thmas). This strategy grup will frm the basis fr ur nging public advisry grup (PAG). The PAG will wrk clsely with the PPI team in develping and delivering the PPI strategy. Fr mre infrmatin n the Bristl BRC strategy, please cntact Nreen.Hpewell-Kelly@UWE.ac.uk Definitins By Patient and Public we mean patients, ptential patients, carers, service users, and members f vluntary, cmmunity and service user grups. By Invlvement we mean having an active rle in influencing decisins, particularly early in the develpment f prpsals, s that there is still time fr significant influence. Engagement is smetimes used synnymusly with Invlvement, but here Engagement is used t describe the related prcesses f sharing infrmatin and learning frm research with the public (including access t evidence that might infrm their individual treatment), and the prmtin f participatin in research. Participatin is als smetimes used synnymusly with Invlvement, but here is used t describe the rle f patients r the public as the subjects r participants in research studies. Research Ambassadr is smene wh, frm a public perspective, prmtes the benefits f invlvement and participatin in health research. The PPI team The Bristl BRC prvides the public invlvement team with administrative supprt. The team cnsists f an academic lead, a PPI lead (0.5) and a PPI facilitatr (0.5) Glssary PHWE = Peple in Health West f England PPI = patient and Public Invlvement NIHR = Natinal Institute fr Health Research 5