Subject: Invitation to the 12th Global Summit of National Ethics/Bioethics Committees

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1 18/01/2018 Ref.: CL/4230 Subject: Invitation to the 12th Global Summit of National Ethics/Bioethics Committees Sir/Madam, I have the honour to invite your Government to nominate a participant to attend the 12th Global Summit of National Ethics/Bioethics Committees, which will take place in Dakar (Senegal) from 22 to 24 March This Global Summit is being organized jointly by the Senegalese Ethics Committee (Comité d éthique pour la recherché en santé) and the World Health Organization (WHO), in collaboration with UNESCO. The theme chosen for 2018 is Bioethics, Sustainable Development and Societies. Member States may wish to consider nominating the chairperson of their independent national ethics/bioethics committee/commission/advisory body (NEC) to attend the meeting. Member States without an NEC might consider nominating, to act as an observer to the Summit, any person who supports their action to build an ethics of science/bioethics infrastructure, for example by establishing an NEC, as Member States are called upon to do by Articles 18 to 20 of the Universal Declaration on Bioethics and Human Rights (2005). WHO, UNESCO and the Senegalese Ethics Committee will each contact their respective partners in each Member State. Member States may wish, therefore, to take into account that there may be additional representatives of their country in their delegation participating in the Global Summit. The objectives of the Global Summit, which are closely aligned to the objectives of current UNESCO programming on bioethics and the ethics of science and technology, are to: 7, place de Fontenoy Paris 07 SP, France Tél. : +33 (0) Fax : +33 (0) Bring together NECs from around the world to share thoughts and experiences in relation to bioethical issues; 2. Serve as an international forum for the exchange of views and debate on bioethical issues of common global interest, based on the revision of the state of the art of the topics chosen for discussion; 3. Contribute both to common understanding and consensus-building between nations; 4. Assist those nations developing their national bioethical institutional and regulatory framework and guidelines; and, 5. Provide the space and opportunity to convene regional forums of NECs. To Ministers responsible for relations with UNESCO

2 CL/4230 page 2 Further information, including on the venue, on suggestions for accommodation and on visa requirements, will be made available at the Global Summit website ( in due course. Kindly note that the language for the meeting will be English, with simultaneous interpretation in French being provided. In addition, invitations will be extended to United Nations and other international organizations working in bioethics, international experts and funding agencies. Due to financial constraints, no funding is available to support the participation of any country. Nominations for participation in the Global Summit must be sent by to globalsummit@unesco.org, with a copy to ct_ethics@who.int by 15 February 2018 using, as the subject, Global Summit Instructions on registration will be sent directly to the nominees, together with other logistical information. Accept, Sir/Madam, the assurances of my highest consideration. Audrey Azoulay Director-General Encs: 1 cc: Permanent Delegations and Observers to UNESCO National Commissions for UNESCO

3 CL/4230 page 3 Global Summit Bioethics, Sustainable Development and Societies DAY 1 22 March 2018 (Thursday) (coffee break at 11.15) Pre-Summit Workshops (Optional) 2018 Dakar, Senegal Programme Outline Participants will be able to choose between several workshops, for example on Basic Training for NBCs Datasharing Steering Committee meeting Rapid Reviews of Research Lunch break Opening Ceremony Plenary Session Social Science Interventions Welcome by the Organizers of the 12th Global Summit in Dakar Welcome by the Prime Minister TBC DG Keynote Address Coffee break Reporting Back Report from the 11th Global Summit in Berlin Germany Report from the WHO Secretariat of the Global Summit Regional summit Hosts report on Regional Summits Discussion/Q&A Report from International Organizations UNESCO Council of Europe WHO Discussion Reception How to communicate bioethics in your country

4 CL/4230 page 4 DAY 2 23 March 2018 (Friday) Plenary Sessions by experts in the field concerning topics which have been identified through feedback from the previous Global Summit and Regional Summits Welcome Bioethics, social justice and civil society Prof. Fatou Sarr Sow, Director of Laboratoire Genre et Recherche scientifique Université Cheikh Anta Diop de Dakar Dr. Amar Jesani, Center for Studies in Ethics and Rights, India Discussion Coffee break Bioethics in electronic data era Speaker 2 TBC Discussion Jeroen van den Hoven, Professor of Ethics and Technology, Delft University of Technology, the Netherlands Bioethics, Health emergencies and resilience Dr. Tim Evans - TBC /another speaker from the World Bank Dr Janneth Mghamba MoH, Tanzania Discussion Lunch MARKET PLACE 5 MINUTE PRESENTATIONS FOLLOWED BY 5 MINUTES DISCUSSION FOR EACH STALL Breakout Groups Coffee Break Parallel breakout discussion groups. (Participants select a topic from the presentations in the morning) One of the NECs opens the session with a clear problem/question based talk (5 minutes) followed by two other NECs perspectives (5 minutes each) on the topics discussed in the morning session, followed by discussion. Each group should consider developing recommendations. Bioethics, social justice and civil society Bioethics in electronic data era Bioethics, Health emergencies and resilience Presentation of outcomes from the parallel group discussions, and agreement on final recommendations End of Day Draft of Call-for-Action Statement (closed Group)/ Time for Visiting Poster Exhibition Dinner

5 CL/4230 page 5 DAY 3 24 March 2018 (Saturday) Presentation of the IBC Report on Refugees and Health Discussion International Framework for Accreditation Of Research Ethics Committees WHO Discussion Regional Meetings Coffee break AFRO AMRO+EURO EMRO SEARO+WPRO Regional Meetings Continue Reports from Regional Meetings. Four presentations (10 minutes each) from the regions, followed by discussion Lunch break Coffee Break Panel discussions on Issues, Challenges, and Country Perspectives from National Ethics or National Bioethics Committees Stream II on Bioethics and health as a human right, Stream I on ethics Stream III on Role of Bioethics looking at the role of NECs guidance on Committees in strengthening and the tension between Genetics/Genomics access to reproductive health. health systems and individuals Call for Action Statement, Global Summit 2020, Announcement of Next Venue, and Closing Remarks End of Day 3 & Farewell

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